Appendix B: Topic Guide

The wording of the alternative vignette formats is as follows.

Paul - a person like them, who lives in his own house. He gets help/support with things like having a bath, washing or getting dressed. He gets help/support with cooking and cleaning his house, and with shopping and with making a list for shopping.
Sean - the same age as them, he has an older brother and a younger sister. He goes to a job during the week. His job is at a factory near his house. Sean works in the same place as his older brother and some of his neighbours.
Mary - the same age as them, she has an older brother and a younger sister. She does the same things as the. She goes to the doctor she likes and Mary's doctor is the same one that her brother and sister go to.
Ciara - the same as them. She likes to go to town to shop. When she goes to town or goes to sport she gets the same bus as everyone else. She has to wait for the same bus everyone else waits for.

The participants were asked if these scenarios were a good idea, if they would like to be the same as these people or not, and if so, what supports they would need.

Key topics to explore - what would help, what would hinder

Independence	Social / Community participation
big life decisions - live the life you want	mixing with people generally
where and with whom you live	doing what your peers do
choice in day to day activities	using local social facilities

Topic guide - draft to guide visuals, vignettes
People with disabilities	Advocates, families, frontline staff
Independence	Independence
The big life decisions	The big life decisions
To live the life you want to live and feel happy with your life (e.g. role, career, relationships)	What would promote greater independence for people with disabilities in living the lives they want to lead
what would help you achieve that	What would restrict greater independence for people with disabilities in living the lives they want to lead
what would hold you back
Choice about where and with whom you live	Choosing where and with whom to live
Where would you like to live in 5 years time?	What do you see as the best housing arrangement for adults with disabilities
what would help you achieve that	what would help achieve that
what would hold you back	what would hinder achieving that
Who would you choose to live with?	What supports would help people with disabilities live more independently
what would help you achieve that	What would hinder that?
what would hold you back
Everyday life	Everyday life
What would help you be more independent in your everyday life, and your daily activities and in choosing how you spend your day and where you go to,	What would help people with disabilities be more independent on a day to day basis - how they spend their day, daily and activities, where they go
what would hold you back	what would hold them back?

Social and community participation	Social and community participation
Mixing with people you want to be with	Mixing with people you want to be with
What would help you spend more of your day to day time with the people you would like to spend your time with?	What could help someone with a disability mix more in mainstream society?
What would help hold you back	what would hold them back?
Joining in like your peers	Joining in like peers
Think of things and activities you'd like to do that other local people, at your age or stage in life, would do	What would help someone with a disability doing the things they would like to do that others in their area of their age or stage in life would do
what would help you do them	what would hold them back
what would stop you
Using local facilities	Using local facilities
What would help you use facilities and amenities in your neighbourhood or downtown that you might like to use (e.g. shops, pubs, cafés, cinema, gym, sports facilities, etc), and what would hold you back	What would help or hinder someone with a disability using facilities and amenities, in the neighbourhood or downtown (e.g. shops, pubs, cafés, cinema, gym, sports facilities, etc)

Likely Health Questions - views on	Likely Health Questions - views on
money follows the person/individualised budgets	money follows the person/individualised budgets
mainstream services for people with disabilities, e.g separation of housing and health supports; mainstream health services	mainstream services for people with disabilities, e.g separation of housing and health supports; mainstream health services
moving from a care framework to supports for inclusion in mainstream activities (work/leisure etc)	moving from a care framework to supports for inclusion in mainstream activities (work/leisure etc)